Thursday, September 22, 2011


Still waiting on results from MRI.  Just waiting on Doc to call us back....

Friday, September 16, 2011

More to Come...

The Doc came and got us out of the waiting room after Faith had been back in XRay fo about 1hr 30mins. I honestly thought something was wrng because they told us 2 hours.  BUT PTL everything went so well they finished early!! Then we went back to the recovery room and she woke up on her own and so soon she was perfect! They told us she could just go home! No spending the night!!! We have no results we will call Dr.Hornig on Monday.


Faith is out of her MRI and doing well. The nurse said everything went great and ran very smoothly. Hopefully we can get out of here soon, thanks for your prayers.


It's now 9:12am. We made it to CMH this morning at 7:00am. We stayed the night at the Ronald McDonald House last night, it's about a block from hospital. They took Faith back at just about 9am. They say it will take about 2 hours for all the scans they are wanting. Then the plan is to go to a room on the floor and stay until we talk with a doc and if Faith is acting normal then we will be able to go home. Praying all goes well and we sleep in our own beds tonight and not in a chair or the hospital room couch. :) Thanks so much for all the prayers.

Monday, September 12, 2011

The Plan

The swallow study didn't happen on Friday, we rescheduled it for October 27th. The OT we see in clinic at CMH said Faith is doing really well but wants to wait one more month. IF Faith was to fail this test we would have to wait 12 months before retaking the test, due to the amount of radiation she will be receiving. We want to take no risks and just pray she will pass this test next month! We have been giving her some baby foods and thickened water to start with. We must be careful that she is not aspirating any fluid that is going into for mouth.

This Friday Faith will be having a follow-up MRI (Sept. 16). The last MRI she had showed fluid up and down the whole spine. If there was a collection of fluid where the spine wouldn't be able to handle it then she could lose mobility in her limbs. PRAISE TO THE LORD, she is still moving all around! Those arms and legs go everywhere! :) She is rolling from side to side and sitting up some on her own, not to long but she is sitting. Faith's appointment is at 7am. CMH called and said to pack a bag just in case we would need to stay the night there on Friday night. Faith will have to be put under anesthesia to have the MRI done. The hospital will have to monitor her and make sure she is acting normal before sending her home. Pray we won't have to stay the night.