Saturday, May 7, 2011

Home Again

There has been alot going on in the Pfeifer home the past two weeks. First of all Faith has been home a record, YEAH!!!! We are SOOOOO excited she has decided to stay home this time. The other day I was sitting out in the living room with my son Mason, age 4 and he looked over at Faith in her swing and said, "Mama I am so happy Faith is still home." That means more to me then anything, to hear the words of my 4 year old's heart, pure love for his new sister!

We have a home health nurse, Linda. She has been wonderful! She is just what I need to be able to live somewhat of my new normal lifestyle. She has been sent from heaven for me or should I say for Faith. With Linda here I am able to leave and run my errands and spend time with the other kids and not have to stay home all the time. I would be staying home most the time if she weren't here. She has fit in just wonderful.

We went into CMH this last visit for Faith's blue spells. Well she is still having them, but she is recovering on her own!! PTL!! We have not had to "bag" her in a little over a week! Praise straight to the Lord! It is soo scary to see your child turn blue then go on to turn gray. But when she takes that first breath after a blue spell it is a wonderful sight to see her skin pink!!

She still has high blood pressure, well she doesn't with the drugs they have her on. Below is a picture of the drugs she has every morning at 9am with her breakfast-formula. I don't mind giving so many to her, because they really do help her! Those doctors know what they are doing, most the time. ;)

We had our first Special Care Clinic appointment. We were there for about four hours and saw the following...OT, PT, Dr.Hornig-neurosurgery, Dr.Murphy-urologist, Rehab Dr, Orthopedics Dr, Peds Dr, social worker, nutritionist, and I am sure I am forgetting someone. It is a wonderful program they have at CMH (that's were clinic is) where all the doctors come to us and we stay in one room. We will have separate appointments for ENT, general surgery and the pulmonologist, they do not attend the Special Care Clinic.

I will only speak for myself....The past 8 months have been the hardest months of my life. I have been though some hard times but nothing like this. Just think of your child being sick with the flu and there is nothing you can do. That is what it has felt like, helpless. We found out Faith was going to have special needs at 20 weeks in the womb. I want to make it VERY CLEAR I have never been mad or upset with God. Faith is a true blessing! But I have asked him many times Why?

I know there is a reason why she is here. I can tell you she has touched more lives in the past four months then I have in my life time. I hear stories from people who read this blog about how Faith has been a true inspiration to them personally or to there family. I have been out and about (four different times) and someone will hear me talking to my kids about "Baby Faith" and they will stop me and and say "Are you baby Faith's mother?" and I say proudly "Yes I am". Remember I have no idea who these people are and they go on to tell me they pray daily for Faith and our family. The Lord is so faithful and he does provide in times of need. She is one chunky, big bright eyed, beautiful, little girl making a very BIG impact! When I am rocking her I just stare at her and think the Lord has so much in store for you.

The Lord made us just the way he wants us to be.


  1. You are so right! The Lord knits us all perfectly together - exactly as He wants us to be ... and He never makes mistakes! We love your family :-)

  2. you are such an amazing mother. beautiful family. thanks for sharing & will continue praying for you everyday. god bless you all!
    -ann rupp :)

    p.s. it's been great running into you that last few weeks :)