Monday, January 10, 2011

Busy Day

Even though we were snowed in, in Topeka our little Faith had a very busy day today!!  We spoke with the nurse a few times today and she told us that Faith is able to be on her back for one hour out of the 24 in a day.  They will be taking it slow for the pressure on her back.  The nurse says she loves being on her back.  I think Faith will soon "see" what she has been missing out on.  There is one spot on her back incision that they are keeping an eye on.  They will be placing an Ace Wrap on the incision to help it heal.

Faith had her hearing test early this morning and she passed in both ears!  PTL!  We were told sometimes, the side of the head with the shunt doesn't pass the hearing test.  So we were glad to hear she passed.

Faith had her kidney and bladder scan today and she passed that too!  She is on a roll!  I think she wants to come home and be with her real family instead of her family at Children's Mercy!  Her kidneys are on the right track for size and they found no kidney stones or any mass.

Tonight I received a call from Children's Mercy.  When I saw the number on the caller ID I won't lie I was worried.  But they were calling to tell me that Faith had switched rooms!  Since she is doing so well she now has a room with a TV, bathroom, shower, and even a place for one parent to sleep.  I guess you could say it probably looks like a real hospital room instead of being in the INCU pod. 

With all this snow I will have to see what the weather is like tomorrow to see if I am able to go up and see all the changes!  I really wanted to go today but I know it was better for my safety to stay home.  Hoping the weather is better tomorrow so we can go see her!


  1. Thank you Lord for all your blessing and healing you have given to Faith. Thank you for holding her in the palm of your hands. Faith is such a strong and determined little girl, look out mom and dad! What a special moment when Elizabeth gave Faith her pink "Ellie" to keep her company when you aren't there. Just keep on getting closer to taking her home with such a loving and special family.
    Blessings, Paula

  2. So glad to hear all the good news. What a great God we have... and what great parents Miss Faith has, too.

  3. What great news! We have an AWESOME God! Thoughts and prayers are with you all!

  4. We are so excited to see Faith doing so good. We are praying for her and you also. She is one special little girl. We have such a wonderful God.
    Love In Him Doug & Leida

  5. Yeah!!!!!!!!!!! Hope you can see her soon!

  6. We are so blessed to have such a angel "Faith" with us. We have been praying for her and all of her family. She has given us deeper faith. The name you have given to her fits her perfectly. God bless you and may he keep all of you in the palm of his hands.
    Love and prayers Ellie,LeRoy and Troy

  7. My name is Melanie, and I am a friend of the Claunch family in Kansas City. Our little boy visits Children's Mercy evrry so often due to a liver disorder, and we will be there Thursday. I would love to bring you anything you might need. I will continue to pray for Faith. Your journey is heartbreaking and inspiring all in one. Our God is an awesome Healer, Father, Comforter, Friend, which I'm sure you know based on your posts.
    If there's anything I can do for you while Faith is at CM, PLEASE do not hesitate to ask!
    Melanie Sloan

  8. SO encouraging to hear! How faithful our God is!