Thursday, March 17, 2011

Moving Forward

We went to Children's Mercy tonight to see Faith and to Skype with the Grandparents who live in Billings, MT (Mic's Dad and Stepmom).  They called and were in need of a "Faith Fix", so we made it happen via web cam. :) 

While we were there today Faith's Attending doctor and main pediatrician resident doctor came by and talked with Mic and I about the next step for Faith.  Of course we were hoping they would say, "well you can take her home tomorrow", but he didn't.  Faith will be going to surgery to have a tracheostomy and a gastrostomy next week.  We know having this done will be a major lifestyle change but we are really ready to have her home, and are ready to make any kind of change to make that happen.  God has been very faithful.  We have many praises even though we don't necessarily want the trache and g-tube.  We still see many blessing everyday that God has and is giving our family.  This has been my verse from before Faith was even here and was still in my womb...

Jeremiah 29:11  For I know the plans for you, declares the Lord, plan to prosper you and not to harm you, plans to give you hope and a future.

I know that the Lord has already written her story and I am soo excited to see what the next chapter will bring.  I know there is hope in our future!  And I have no worries about what the Lord will bring us because he is holding Faith's hand when I not able to be at the hospital at her bedside.  And when I am there I feel him there with me. 

Mason (age 4) went to Vacation Bible School last year and we had purchased the music soundtrack CD from the church, Prince of Peace.  I know that God works in the smallest ways but on that CD there is a very up beat version of the song Today is the Day and it is the best song.  Today is the day the Lord has made let us rejoice and be glad in it (Psalm 118:24) .  When I hear that song I know that Today is the day not yesterday and not tomorrow but Today.  We live one day at a time and that is hard for me to think about.  I like to have all the plans and details worked out on paper, but God has shown me that he is in control and we need to live one day at a time.

Our new normal will be hard, but we both know that we can do it because God is on our side!  We have an awesome family and body of supporters who pray for us all the time.  We just had a 24 hour prayer chain that happened last weekend but I really think someone somewhere is praying for Faith and our family all hours of the day.  Thank you for all your prayers!  We really do feel peace about what's going to be happening next week.

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