It is not our intent to complain, but to let you know how things are, this week has been pretty taxing for both Ashley and I. Our emotions have run high, our patience has been tested, and Faith has shown little improvement. All the while we wrestle with God's plan and pray for healing, strength and good decisions. We have faith that God is control, but sometimes its hard to see the forest for the trees.
The objective for the week has been to ween Faith off of the respirator to see what improvements, if any, have resulted from her most recent surgery. Due to her breathing issues Faith is in the PICU (Pediatric Intensive Care Unit). The unit has been very busy this week with a lot of kids in much worse shape than Faith. As a result our case had been pushed to a much lower priority level. Lots of waiting for the staff to get to us. Finally by Thursday things had calmed down enough that the staff was able to give Faith the attention that she needed. She was removed from the ventilator at 9:00 on Thursday morning. Ashley and I spent all day with her. Her vocal cords had not improved. It was tough for us to watch her struggle so hard to breath on her own. By 8:00PM we decided that we should go home while the nurses continued to watch her. At 2:00AM Friday the decision was made that she should be put back on the ventilator. Disappointing news for the both of this, but she really does breathe easier on the respirator, which is a relief.
So whats the next step? The doctors are going to give Faith a CAT scan on Monday to see what is going on with the lower ventricle in Faith's brain. From that CAT scan the Doctors will decide whether or not a stint still needs to be placed to allow for better circulation in her brain. Regardless of their decision to place the stint, if Faith's breathing does not improve over the next week, they will most likely insert a tracheal tube in her airway to permit her to breath on her own. This will be there last resort, but we have been informed that this is where things are headed.
Thanks for your prayers and thanks for checking in.
Mic and Ashley
Praying they quickly find the best solution for Faith. Praying for healing. Praying for peace, patience, and rest for Mom and Dad.
ReplyDeleteRochelle
Praying for God's wisdom for the doctors and peace and rest for you. God is in control and loves you all very much.
ReplyDeleteLeida & Doug
prayers....and more prayers. My heart aches with yours as you walk this journey.
ReplyDeleteThank you SO MUCH for the updates; I know it takes precious time away from Faith and your kids. I am praying for your precious little Faith. I pray her cords start working, and she can come home soon... praying for respite and renewed strength for you both.
ReplyDeleteWe are praying, praying, praying for Baby Faith's vocal cords to work -- also for stamina and strength for you both. We love you all --
ReplyDeletePraying for your precious Faith and your family, thank you for the updates, I kept hitting refresh all weekend praying her her. Praying for wisdom for you and the Doctors ~ Hugs from TX!
ReplyDeletePraying, praying, and more praying. Healing for your precious girl and peace for you both. Know that you are always on our minds and in our prayers:-)
ReplyDelete